A Hot MS

Living with multiple 𝗔𝘂𝘁𝗼𝗶𝗺𝗺𝘂𝗻𝗲 𝗖𝗵𝗿𝗼𝗻𝗶𝗰 𝗗𝗶𝘀𝗲𝗮𝘀𝗲𝘀 can feel like a full time job. And it honestly can be at times. But what if we had the chance to make it easier? I myself am living with (𝙈𝙪𝙡𝙩𝙞𝙥𝙡𝙚 𝙎𝙘𝙡𝙚𝙧𝙤𝙨𝙞𝙨, 𝙁𝙞𝙗𝙧𝙤𝙢𝙮𝙖𝙡𝙜𝙞𝙖, 𝙋𝙨𝙤𝙧𝙞𝙖𝙨𝙞𝙨 𝙖𝙣𝙙 𝘼𝙨𝙩𝙝𝙢𝙖). ⁣

That means 4 separate Dr’s, tests for each, treatments for each, different providers, separate patient portals. Yes! It gets overwhelming to manage everyone!

I’ve been asking myself and others: “Why can’t everything just be in one place!?” 🤷🏻‍♀️ 

𝘐’𝘷𝘦 𝘣𝘦𝘦𝘯 𝘴𝘢𝘺𝘪𝘯𝘨 𝘵𝘩𝘪𝘴 𝘧𝘰𝘳 𝘺𝘦𝘢𝘳𝘴 𝘢𝘤𝘵𝘶𝘢𝘭𝘭𝘺. ⁣

It’s honestly exhausting and for me personally, managing everything becomes ten times harder when my brain is not working at an optimal level. Cognitive Fog is one of the most difficult parts of living with MS and Fibro. You wind up feeling like you can’t maintain clear thoughts. You know what you want to say but can’t quite put it into words. I know I used to be extremely organized and planned everything in life. I know this is definitely something that has changed since my MS has progressed.

Living with #multiplesclerosis is particularly difficult because there are so many questions we still don’t have answers to as patients. Scientists and Doctors are digging for evidence on how we can better understand and actually cure MS. But how can we as patients contribute to the solution?⁣

Of course we have access to clinical trials and what not, but how effective can they really be when they only have access to the information we list in the onboarding forms? Allowing researchers and scientists access to more information allows for more answers, more treatments, more cures.

There is a lack of research being done to learn more and find new and more effective treatment options for Multiple Sclerosis. PicnicHealth is working to change this.

They are doing this by connecting patients with researchers to enable them to share parts of their health history anonymously along with hundreds of other people living with Multiple Sclerosis.

By examining “real-world data” through collecting and analyzing the medical records of real people, researchers can find answers that can’t be found in clinical trials. There is important information in each person’s unique healthcare journey so it is is important that you share your story. 

When someone with Multiple Sclerosis signs up, they get free lifetime access to PicnicHealth— a service that provides you with all of your medical records from all of your doctors in one easy virtual place.

When I found out about @picnichealth 💜I remember hearing myself sigh in relief. They are a company that has developed a digital tool for patients like me!

With #picnichealth everything is in one place virtually!

+ Full medical records

+ Test results

+ Prescriptions

+ Provider Notes

+ Imaging

Your information is HIPAA-compliant, secure, anonymous and CONVENIENT. What’s awesome is that PicnicHealth partners with Life Science Companies who are developing new research for people living with MS Meaning= we get to be a part of the research and solution!

By securely providing my (anonymous) medical data (with my permission) medical researchers can use some of my information to find patterns amongst people living with MS that can’t be found in clinical trials.

Through experiences with things falling through the cracks with Dr’s offices and contradicting diagnoses in the past, I’ve learned that the only person who will truly advocate for my health is ME. I need to be in control. I need to not just take someone’s word for it that my blood levels are normal, but SEE the results with my own eyes. 

Think about it. 

We are paying for the tests, but the results always go directly to the ordering Dr. Do we actually ever “see” the results? Or are we simply making a follow up appointment where we are TOLD the results. I guess I am at the point in life where I don’t want to be TOLD how I am doing. I want to SEE it for myself!

Copy and Paste the Link below to sign up

​​https://picnichealth.com/r/K7xsri

(please use my direct link so PicnicHealth knows Brittany sent you!)

We can all sit here and complain about our illnesses all we want. But what if we can actually take a step towards contributing to the solution? What if we don’t just take our Dr’s word for it and can really look at our medical records ourselves? We have that opportunity now with PicnicHealth.