Yesterday I had my first appoint with Dr. Bandari with the Multiple Sclerosis Center of California. I was very happy with him. He asked questions that my previous neurologist with Kaiser never asked and went as far back to when I was very young. I was shocked that my answers to his questions led to his belief that I probably have had Multiple Sclerosis from over 10 years now and did not know it.
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It was more reassuring to add up the puzzle pieces of my life and there was a reason why so many things had happened in my past even from when I was a teenager. We spoke about switching me over to Ocrevus instead of Rituxan but he did explain the cancer risks with the drug and be it that I have cancer so strongly on both sides of my family I’m definitely hesitant to try it. I will be speaking with him again regarding other treatment options. Such as Tysabri or even daily self-given injections.
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He also mentioned his concern for me having NMO also which is Neuromyelitis Optica and we are testing for this this week. I don’t need to collect ANOTHER auto immune disorder, but he was concerned that the lesions on my spine are quite large and in copious amounts.
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I’m going to be honest. I’m a bit stressed out and nervous which is normal. I was given a prescription for an AFO Orthopedic piece for my left leg which he said would help with my drop foot and my lack of mobility on the left side. I have that appnt tomorrow to get fit for one and I WILL BE PAINTING THAT SUCKER GOLD WITH GLITTER….or leopard…regardless…I WILL BE customizing that thing to make it fit my personality!
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I keep telling myself everything will be ok. I say this to myself about 30 times in a minute. All I can do is keep smiling and staying positive. Yes I ugly cried last night which is normal and healthy and I may do it again today. We got this! One day at a time. Man I want a cookie.